Crystal Lee (she/她)

Disability studies reading list

Published on

Huge thanks to Ashley Shew for compiling and reading this list of fantastic books with me.

STS approaches to disability

  • Admon-Rick, Gaby. “Impaired Encoding: Calculating, Ordering, and the ‘Disability Percentages’ Classification System.” Science, Technology, & Human Values 39, no. 1 (January 2014): 105–29. https://doi.org/10.1177/0162243913508326.
  • Alper, Meryl. Giving Voice: Mobile Communication, Disability, and Inequality. Cambridge, MA: The MIT Press, 2017.
  • Alper, Meryl, Elizabeth Ellcessor, Katie Ellis, and Gerard Goggin. “Reimagining the Good Life with Disability: Communication, New Technology, and Humane Connections,” 2015. https://ses.library.usyd.edu.au/handle/2123/13268.
  • Asch, Adrienne. “Recognizing Death While Affirming Life: Can End of Life Reform Uphold a Disabled Person’s Interest in Continued Life?” The Hastings Center Report 35, no. 6 (2005): S31–36.
  • Bartmess, Elizabeth, ed. Knowing Why: Adult-Diagnosed Autistic People on Life and Autism. The Autistic Press, 2018.
  • Blume, Stuart, Vasilis Galis, and Andrés Valderrama Pineda. “Introduction: STS and Disability.” Science, Technology, & Human Values 39, no. 1 (January 1, 2014): 98–104. https://doi.org/10.1177/0162243913513643.
  • Boellstorff, Tom. “The Opportunity to Contribute: Disability and the Digital Entrepreneur.” Information, Communication & Society 22, no. 4 (March 21, 2019): 474–90. https://doi.org/10.1080/1369118X.2018.1472796.
  • Friedner, Michele, and Stefan Helmreich. “Sound Studies Meets Deaf Studies.” The Senses and Society 7, no. 1 (March 1, 2012): 72–86. https://doi.org/10.2752/174589312X13173255802120.
  • Fritsch, Kelly, and Aimi Hamraie. “Crip Technoscience Manifesto (Access Copy).” Boston, MA, 2017.
  • Jain, S. Lochlann. “The Prosthetic Imagination: Enabling and Disabling the Prosthesis Trope.” Science, Technology, & Human Values 24, no. 1 (January 1999): 31–54. https://doi.org/10.1177/016224399902400103.
  • Mills, Mara. “On Disability and Cybernetics: Helen Keller, Norbert Wiener, and the Hearing Glove.” Differences 22, no. 2–3 (January 1, 2011): 74–111. https://doi.org/10.1215/10407391-1428852.
  • Mills, Mara. “Deafness.” In Keywords in Sound, edited by David Novak and Matt Sakakeeny. Durham, NC: Duke University Press, 2015.
  • Keating, Elizabeth. “Homo Prostheticus: Problematizing the Notions of Activity and Computer- Mediated Interaction.” Discourse Studies 7, no. 4–5 (2005): 527–545.
  • Keating, Elizabeth, Terra Edwards, and Gene Mirus. “Cybersign and New Proximities: Impacts of New Communication Technologies on Space and Language.” Journal of Pragmatics 40, no. 6 (June 2008): 1067–81. https://doi.org/10.1016/j.pragma.2008.02.009.
  • Keating, Elizabeth, and R. Neill Hadder. “Sensory Impairment.” Annual Review of Anthropology 39, no. 1 (2010): 115–29. https://doi.org/10.1146/annurev.anthro.012809.105026.
  • Keating, Elizabeth, and Gene Mirus. “American Sign Language in Virtual Space: Interactions between Deaf Users of Computer-Mediated Video Communication and the Impact of Technology on Language Practices.” Language in Society 32, no. 5 (2003): 693–714.
  • ———. “Examining Interactions across Language Modalities: Deaf Children and Hearing Peers at School.” Anthropology & Education Quarterly 34, no. 2 (2003): 115–35. https://doi.org/10.1525/aeq.2003.34.2.115.
  • ———. “The Eyes Have It: Technologies of Automobility in Sign Language.” Semiotica 191 (2012): 287–308.
  • Keating, Elizabeth, Emi Nagai, Neill Hadder, and Jilly Kowalsky. “The Role of the Mobile Phone in the Welfare of Aged and Disabled People.” University of Texas at Austin and NTT DoCoMo, Inc., 2007.
  • Petrick, Elizabeth R. Making Computers Accessible: Disability Rights and Digital Technology. Baltimore, MD: Johns Hopkins University Press, 2015.
  • Tucker, Bonnie. “Technocapitalist Disability Rhetoric: When Technology Is Confused with Social Justice.” Enculturation 24 (April 26, 2017). http://enculturation.net/technocapitalist-disability-rhetoric.
  • Williams, Anna. “Autonomously Autistic.” Canadian Journal of Disability Studies 7, no. 2 (July 5, 2018): 60–82. https://doi.org/10.15353/cjds.v7i2.423.
  • Williams, Rua. “Metaeugenics and Metaresistance: From Manufacturing the ‘Includeable Body’ to Walking Away from the Broom Closet.” Canadian Journal of Children’s Rights / Revue Canadienne Des Droits Des Enfants 6 (November 8, 2019): 60–77. https://doi.org/10.22215/cjcr.v6i1.1976.
  • Williams, Rua M., and Juan E. Gilbert. “Cyborg Perspectives on Computing Research Reform.” In Extended Abstracts of the 2019 CHI Conference on Human Factors in Computing Systems, 1–11. CHI EA ’19. Glasgow, Scotland: Association for Computing Machinery, 2019. https://doi.org/10.1145/3290607.3310421.

Interdependence

  • Bennett, Cynthia L., Erin Brady, and Stacy M. Branham. “Interdependence as a Frame for Assistive Technology Research and Design.” In Proceedings of the 20th International ACM SIGACCESS Conference on Computers and Accessibility - ASSETS ’18, 161–73. Galway, Ireland: ACM Press, 2018. https://doi.org/10.1145/3234695.3236348.
  • Bennett, Cynthia L, and Os Keyes. “What Is the Point of Fairness? Disability, AI and The Complexity of Justice.” In SIG ACCESS: Special Interest Group on Accessible Computing, 125:6. Pittsburgh, PA, 2019.
  • Bennett, Cynthia L., and Daniela K. Rosner. “The Promise of Empathy: Design, Disability, and Knowing the ‘Other.’” In Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems - CHI ’19, 1–13. Glasgow, Scotland Uk: ACM Press, 2019. https://doi.org/10.1145/3290605.3300528.
  • Boys, Jos. Disability, Space, Architecture: A Reader. Taylor & Francis, 2017.

Disability and design

  • Bringolf, Jane. “Universal Design: Is It Accessible?” Multi 1, no. 2 (Spring/Summer 2008): 45–52.
  • Buccafusco, Christopher. “Incentivizing Accessible Design.” SSRN Scholarly Paper. Rochester, NY: Social Science Research Network, December 3, 2019. https://papers.ssrn.com/abstract=3497902.
  • Good, Judith, Katta Spiel, Os Keyes, Rua M. Williams, Eva Hornecker, and Cynthia L. Bennett. “‘I Am Just Terrified of My Future’’’ – Epistemic Violence in Disability Related Technology Research.’” In CHI ’20 Extended Abstracts, 14. Honolulu, HI, 2020.
  • Hamraie, Aimi. Building Access: Universal Design and the Politics of Disability. Minneapolis, MN: University of Minnesota Press, 2017.
  • ———. “Designing Collective Access: A Feminist Disability Theory of Universal Design.” Disability Studies Quarterly 33, no. 4 (September 5, 2013). https://doi.org/10.18061/dsq.v33i4.3871.
  • ———. “Mapping Access: Digital Humanities, Disability Justice, and Sociospatial Practice.” American Quarterly 70, no. 3 (2018): 455–82. https://doi.org/10.1353/aq.2018.0031.
  • ———. “Universal Design and the Problem of ‘Post-Disability’ Ideology.” Design and Culture 8, no. 3 (September 2016): 285–309. https://doi.org/10.1080/17547075.2016.1218714.
  • ———. “Universal Design Research as a New Materialist Practice.” Disability Studies Quarterly 32, no. 4 (2012).
  • Hamraie, Aimi, and Kelly Fritsch. “Crip Technoscience Manifesto.” Catalyst: Feminism, Theory, Technoscience 5, no. 1 (April 1, 2019): 1–33. https://doi.org/10.28968/cftt.v5i1.29607.
  • Hendren, Sara. “All Technology Is Assistive: Six Design Rules on Disability.” In Making Things and Drawing Boundaries, edited by Jentery Sayers, 139–46. Experiments in the Digital Humanities. University of Minnesota Press, 2017. https://doi.org/10.5749/j.ctt1pwt6wq.18.
  • Mankoff, Jennifer, Gillian R. Hayes, and Devva Kasnitz. “Disability Studies as a Source of Critical Inquiry for the Field of Assistive Technology.” In Proceedings of the 12th International ACM SIGACCESS Conference on Computers and Accessibility - ASSETS ’10, 3. Orlando, Florida, USA: ACM Press, 2010. https://doi.org/10.1145/1878803.1878807.
  • Morris, Meredith Ringel. “AI and Accessibility: A Discussion of Ethical Considerations.” Communications of the ACM, August 21, 2019. https://www.microsoft.com/en-us/research/publication/ai-and-accessibility-a-discussion-of-ethical-considerations/.
  • Guo, Anhong, Ece Kamar, Jennifer Wortman Vaughan, Hanna Wallach, and Meredith Ringel Morris. “Toward Fairness in AI for People with Disabilities: A Research Roadmap.” SIG ACCESS Special Interest Group on Accessible Computing 125 (August 2, 2019). http://arxiv.org/abs/1907.02227.
  • Pullin, Graham. Design Meets Disability. Cambridge, Mass: MIT Press, 2009.
  • Rosenberger, Robert. Callous Objects: Designs against the Homeless. 3rd edition. Minneapolis: University of Minnesota Press, 2017.
  • Williamson, Bess. “Access.” In Keywords for Disability Studies, edited by Rachel Adams, Benjamin Reiss, and David Serlin, 14–17. NYU Press, 2015. https://www.jstor.org/stable/j.ctt15nmhws.6.
  • ———. Accessible America: A History of Disability and Design. First edition. New York: NYU Press, 2019.
  • ———. “Getting a Grip: Disability in American Industrial Design of the Late Twentieth Century.” Winterthur Portfolio 46, no. 4 (December 2012): 213–36. https://doi.org/10.1086/669668.

Disability as lived experience

Disability and policy

  • Connor, David J., and Beth A. Ferri. “Integration and Inclusion— A Troubling Nexus: Race, Disability, and Special Education.” The Journal of African American History 90, no. 1–2 (January 2005): 107–27. https://doi.org/10.1086/JAAHv90n1-2p107.
  • Davis, Donna Z., and Tom Boellstorff. “Compulsive Creativity: Virtual Worlds, Disability, and Digital Capital.” International Journal of Communication 10, no. 0 (April 15, 2016): 23.

Crip theory and intersections

  • Davis, Lennard J. “Crips Strike Back: The Rise of Disability Studies.” American Literary History 11, no. 3 (1999): 500–512.
  • ———. Enforcing Normalcy: Disability, Deafness, and the Body. London; New York: Verso, 1995.
  • ———. The Disability Studies Reader. 4th ed. New York, NY: Routledge, 2013.
  • ———. The End of Normal: Identity in a Biocultural Era. Ann Arbor: University of Michigan Press, 2013.
  • Donaldson, Elizabeth J. “The Corpus of the Madwoman: Toward a Feminist Disability Studies Theory of Embodiment and Mental Illness.” NWSA Journal 14, no. 3 (2002): 99–119.
  • Erevelles, Nirmala. “Race.” In Keywords for Disability Studies, edited by Rachel Adams, Benjamin Reiss, and David Serlin, 145–48. NYU Press, 2015. https://www.jstor.org/stable/j.ctt15nmhws.51.
  • Erevelles, Nirmala, and Andrea Minear. “Unspeakable Offenses: Untangling Race and Disability in Discourses of Intersectionality.” Journal of Literary & Cultural Disability Studies 4, no. 2 (January 1, 2010): 127–45. https://doi.org/10.3828/jlcds.2010.11.
  • Fritsch, Kelly, and Anne McGuire. “Risk and the Spectral Politics of Disability.” Body & Society, June 19, 2019, 1357034X1985713. https://doi.org/10.1177/1357034X19857138.
  • Garland‐Thomson, Rosemarie. “Feminist Disability Studies.” Signs 30, no. 2 (2005): 1557–87. https://doi.org/10.1086/423352.
  • Garland-Thomson, Rosemarie. Staring: How We Look. 1 edition. Oxford; New York: Oxford University Press, 2009.
  • ———. “The Story of My Work: How I Became Disabled.” Disability Studies Quarterly 34, no. 2 (March 18, 2014). https://doi.org/10.18061/dsq.v34i2.4254.
  • Ginsburg, Faye, and Rayna Rapp. “Disability Worlds.” Annual Review of Anthropology 42 (2013): 53–68.
  • ———. “Disability/Anthropology.” Current Anthropology, December 13, 2019, S000–S000. https://doi.org/10.1086/705503.
  • James, Jennifer C., and Cynthia Wu. “Editors’ Introduction: Race, Ethnicity, Disability, and Literature: Intersections and Interventions.” MELUS 31, no. 3 (2006): 3–13.
  • Kleege, Georgina. “Blind Rage: An Open Letter to Helen Keller.” Southwest Review 83, no. 1 (1998): 53–61.
  • Knight, Amber. “Democratizing Disability: Achieving Inclusion (without Assimilation) through ‘Participatory Parity.’” Hypatia 30, no. 1 (2015): 97–114. https://doi.org/10.1111/hypa.12120.
  • Kudlick, Catherine J. “Disability History: Why We Need Another ‘Other.’” The American Historical Review 108, no. 3 (2003): 763–93. https://doi.org/10.1086/529597.
  • Linker, Beth. “On the Borderland of Medical and Disability History: A Survey of the Fields.” Bulletin of the History of Medicine 87, no. 4 (2013): 499–535.
  • Linton, Simi. “Reassigning Meaning.” In Claiming Disability: Knowledge and Identity, 8–33. New York: NYU Press, 1998. https://www.jstor.org/stable/j.ctt9qfx5w.6.
  • McRuer, Robert. “Crip Eye for the Normate Guy: Queer Theory and the Disciplining of Disability Studies.” PMLA 120, no. 2 (2005): 586–92.
  • ———. Crip Theory: Cultural Signs of Queerness and Disability. New York: NYU Press, 2006.
  • Mitchell, David T., and Sharon L. Snyder. Narrative Prosthesis: Disability and the Dependencies of Discourse. Ann Arbor: University of Michigan Press, 2001.
  • Oliver, Mike. “The Social Model of Disability: Thirty Years On.” Disability & Society 28, no. 7 (2013): 1024–1026.
  • Richards, Penny L. “Disability History Online.” OAH Magazine of History 23, no. 3 (2009): 45–48.
  • Richie, Cristina S. “Not Sick: Liberal, Trans, and Crip Feminist Critiques of Medicalization.” Journal of Bioethical Inquiry, June 29, 2019. https://doi.org/10.1007/s11673-019-09922-4.
  • Ripat, Jacquie, and Roberta Woodgate. “The Intersection of Culture, Disability and Assistive Technology.” Disability and Rehabilitation: Assistive Technology 6, no. 2 (March 1, 2011): 87–96. https://doi.org/10.3109/17483107.2010.507859.
  • Schillmeier, Michael. “Dis/Abling Practices: Rethinking Disability.” Human Affairs 17, no. 2 (January 1, 2007). https://doi.org/10.2478/v10023-007-0017-6.
  • ———. Rethinking Disability : Bodies, Senses, and Things. Routledge, 2012. https://doi.org/10.4324/9780203854846.
  • Shakespeare, Tom. “The Social Model of Disability.” In The Disability Studies Reader, edited by Lennard J. Davis, 4th ed., 197–204. New York, NY: Routledge, 2013.
  • Siebers, Tobin. “Disability in Theory: From Social Constructionism to the New Realism of the Body.” American Literary History 13, no. 4 (2001): 737–54.
  • ———. Disability Theory. University of Michigan Press, 2008.
  • Thomas, Heather, and Tom Boellstorff. “Beyond the Spectrum: Rethinking Autism.” Disability Studies Quarterly 37, no. 1 (March 7, 2017). https://doi.org/10.18061/dsq.v37i1.5375.
  • Thomson, Rosemarie Garland. Extraordinary Bodies: Figuring Physical Disability in American Culture and Literature. 1st edition. New York: Columbia University Press, 1996.
  • ———. “Integrating Disability, Transforming Feminist Theory.” NWSA Journal 14, no. 3 (2002): 1–32.
  • Vries McClintock, Heather F. de, Frances K. Barg, Sam P. Katz, Margaret G. Stineman, Alice Krueger, Patrice M. Colletti, Tom Boellstorff, and Hillary R. Bogner. “Health Care Experiences and Perceptions Among People with and Without Disabilities.” Disability and Health Journal 9, no. 1 (January 1, 2016): 74–82. https://doi.org/10.1016/j.dhjo.2015.08.007.
  • Wendell, Susan. The Rejected Body: Feminist Philosophical Reflections on Disability. Routledge, 2013. https://doi.org/10.4324/9780203724149.
  • ———. “Unhealthy Disabled: Treating Chronic Illnesses as Disabilities.” Hypatia 16, no. 4 (2001): 17–33.

Resources

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